Usually a GP will refer you to be assessed by a Neurologist who specialises in the nervous system and the brain. If the GP suspects you have Dystonia they may even refer you to a Movement Disorder Specialist, who have knowledge of the condition and recognise the physical signs or symptoms.
There isn’t a specific medical test to diagnose Dystonia however it is necessary for the doctor or Neurologist to rule out other conditions that have similar symptoms. A physical and neurological examination may be done, as well as a variety of tests. Here are some of the tests that might be ordered or performed. Some links provided to further information.
Electromyography (EMG) – to check the electrical activity of muscles
Specific Blood and Urine tests – rule out other conditions or to confirm secondary Dystonia.
When the Specialist has confirmed you have Dystonia and what type, then a treatment plan is discussed. It is very important that you understand what the treatment involves and asking any questions that you have will make it easier to make a decision.
Please click on links provided to take you to a list of questions that you may ask the doctor.
Try the question builder! Create a list of questions to ask your doctor using the question builder. Print the list to take to your appointment.
Questions to ask your doctor and health care team – St Vincent’s Health Australia
Top tips for safe health care – booklet to help consumers, their families, carers and other support people get the most out of their health care. You can use the information in the booklet when you talk to your doctor or other health professionals.
Getting second opinions
You have the right to ask a doctor for a second opinion if you are unsure about your diagnosis or medical treatment. More info → Second opinions
For more info on types of Dystonia and treatments refer to links provided.
Types of Dystonia
Need help finding a specialist? Movement Disorder Specialist or Neurologist Directory