Codeine medicines are now prescription only – Info & links

From 1 February 2018 medicines containing codeine are no longer available without a prescription. 

Products containing codeine derivatives, pholcodine, dextromethorphan, and dihydrocodeine are unaffected by the changes.

Please refer to the following link with a list of products affected.

Link: Current list of up-scheduled codeine containing products

For further details click link: Therapeutic Goods Administration (TGA) – Codeine information hub

Codeine is an opioid drug and often used for pain relief. If you will be affected by these changes or experiencing ongoing pain, please speak to your GP or a health professional about pain management.

Links to more information, advice or support

NPS MedicineWise – Medicines with codeine – what you need to know

Pharmacy Guild of Australia – Ask your pharmacist about managing pain Consumer Flyer

Chronic Pain Australia  Chronic Pain Information  

Australian Pain Management Association (APMA) – Pain Link telephone helpline 1300 340 357 

The Australian Pain Society (APS) – Pain Management Clinics or Programs National Directory

Pain Australia – Links to National Pain Services and Programs 

Pain Management Network – Information and Clinics in NSW

Western Australia – painHEALTH 

Do you have Dystonia and need information relating to pain? 

Click on the following link to direct you to information about Dystonia and Pain management.

Do you have Dystonia and need support?

The Australian Dystonia Support Group provide support and information to Australians who have Dystonia, their family members, carers and parents of children with Dystonia. if you would like to join our support group click link or Join Our Group button.

Join our Group


ADSG Connecting and Supporting – A look back at 2017!

It was another active year for ADSG connecting with networks, supporting people with Dystonia and raising awareness.

To read more please click image or link to view recap of 2017!

ADSG Connecting and Supporting – A look back at 2017

Click to view and read more! ADSG Connecting and Supporting – A look back at 2017 PDF

Dystonia Awareness Month – Thanks for Caring and Sharing!

ADSG Thank You

A BIG thanks to the ADSG community for caring and sharing during the Dystonia Awareness Month. We particularly thank those who shared their personal information and their stories, and also to those who donated to dystonia causes or research. Our goal is to continue to raise awareness, understanding and education which may ultimately lead to better treatments and possibly a cure.

It has made an enormous difference this year and certainly exceeded our expectations compared to last year!

This year we composed a Dystonia Awareness Slideshow which was added to our Facebook Community Page. It reached close to 14,000 people. What an outstanding achievement!

Dystonia Awareness Month! What you have missed so far!

Dystonia Awareness Month

Seek permission to copy or use this image

As the end of September grows near, there is still time to join in or be involved with raising awareness of Dystonia. Here are some ways you can help make an impact:

  • Share ou Dystonia Awareness Slide 
  • Leave Dystonia flyers or posters at a clinic or Hospital
  • Add a Dystonia article/story in the media or your Local Council and Community Health Service Newsletter
  • Share our website page and other Dystonia info on Facebook and Twitter

For further ideas click link → Dystonia Awareness Month Page

What you have missed so far!

Have you seen our Dystonia Awareness Slide? Click image to direct you to slide or this link → Dystonia Slideshow

dystonia awareness slide i

Throughout Dystonia Awareness Month we have been sharing slides with photos and info supplied by the ADSG members. Link → Photos and info

Have you seen our new Dystonia images? You can share link to them through our Facebook Community Page! Link → Dystonia Awareness Images

Make it your mission to donate to #Dystonia causes or research! During the #DystoniaAwareness Month it is an opportunity to donate to research, projects or causes relating to Dystonia. Click image to direct you to ‘Donate’ page or this link  Donate

Donate Dystonia

Keep an eye out for more during Dystonia Awareness Month!

Our Website        Find Us on Facebook          Follow us on Twitter   

It’s Dystonia Awareness Month – Spread the word!

It’s September and that means it’s #Dystonia Awareness Month! Please help us to create further awareness and understanding of this debilitating Neurological Disorder by sharing this link or post to the slide! #DystoniaAwareness

Visit our ‘Dystonia Awareness Month’ page for more tips to raise awareness!

Dystonia Awareness Month slide – Seek permission to download to share slide, copy or use images.

Dystonia Awareness Month Slide

Dystonia Awareness Month Slide. Seek permission to copy or use images or slide


Speech Pathology Week – Communication access: Everyone gets the message!

Speech Pathology Week 2017

During Speech Pathology Week 2017 join the conversation about communication accessibility and help make sure “everyone gets the message”.

Participate on social media by using #SPWeek #Dystonia

Speech Pathology Week promotes the speech pathology profession and the work done by speech pathologists with the more than 1.1 million Australians who have a communication or swallowing disorder that impacts on their daily life. Communication is a basic human right and Speech Pathology Week seeks to promote this fact. 

Dystonia can affect your voice and the ability to speak

Dystonia does not only affect the larger body parts like arms and legs, depending on the type of Dystonia, it may also affect your throat, voice or vocal cords, impacting the person’s ability to speak and communicate. More information → Types of Dystonia.  

There are many techniques that could be used to help people with communication difficulties. Augmentative and Alternative Communication (AAC) is a term used to describe a variety of communication methods, which includes communication Apps.

→ Augmentative and Alternative Communication (AAC) Factsheet

 ACC Scope Handout and Communication apps 

More Information 

Tips for successful communication

 What is Communication Access? 

blue lineNext Event Reminder → Dystonia Awareness Month in September!blue line

Get Ready For Dystonia Awareness Month In September!

Dystonia Awareness Month 2017

Dystonia Awareness Month – Seek permission to use or copy this image

Further awareness of this Neurological Movement Disorder is the key to a future cure! Please help those affected by joining us and helping to spread the awareness of #Dystonia during September.

Visit our ‘recent news’ page for updates! If you would like to help spread awareness during the #dystoniaawareness month there are many ways you can achieve this. 

  • Have a Dystonia awareness display at a pharmacy or chemist
  • Leave Dystonia flyers or posters at a clinic or Hospital
  • Add a Dystonia article or story in the newspaper
  • Share information on Dystonia on a radio channel
  • Have a sausage sizzle at Bunnings or another venue and share information on Dystonia
  • Organise a public conference or event to raise awareness of Dystonia
  • Share website page and other Dystonia info on Facebook and Twitter
  • Ask a Hosptial or Clinic to add information on the Dystonia awareness month on their medical display screens
  • Share the ADSG Dystonia Awareness Video 
  • Make it the month to donate to Dystonia research or to a cause relating to Dystonia

Visit our Dystonia Awareness Page for more information and publications!

Free Parkinson’s & Movement Disorder Patient & Carer Information Session!

Parkinson's & Movement Disorders Information Session for Patients & Carers

Flyer Courtesy of Queensland Brain Institute – The University of Queensland

The Asia-Pacific Centre for Neuromodulation (APCN) part of the Queensland Brain Institute at the University of Queensland is hosting a free Patient/Carer Information session. All patients and carers living with Parkinson’s Disease, Dystonia, Essential Tremor and Tourette’s Syndrome are welcome. 

Date:       Saturday 2 September 2017 at 10am – 2pm

Venue:    Caloundra Power Boat Club, 2 Lamerough Parade, Golden Beach, QLD 4551

Note:      A light lunch will be provided

For more info or to register for the session please click on link provided.    

Click Link → 

For more upcoming events or support meet ups please visit our ‘Events’ and ‘Support Meetings’ Page.

#Dystonia #MovementDisorders #Parkinson’s #QueenslandBrainInstitute #DBS

It’s National Pain Week! Let’s Manage Pain!

National Pain Week: 24 – 30 July 2017 #NPW2017 #Dystonia

Dedicated to reducing the social and other barriers to living with chronic pain. Click on link provided for info, updates, conferences and resources!

➡ National Pain Week 

Dystonia can cause a range of symptoms including pain. Click link provided for more info.

➡ Dystonia and Pain

More Links relating to managing pain or coping with pain visit the Chronic Pain Australia website.

➡ Chronic Pain Australia 


It’s Our Birthday!


Today is a very important day for ADSG! It’s the day that Lee Pagan created our very special Australian Dystonia Support Group 6 years ago!

Happy Birthday Australian Dystonia Support Group

We have grown since the 2nd July 2011, we have now over 600 Members (including email Members) and have achieved so much in that time especially with increasing public awareness of Dystonia!

We also have our own Facebook Community Page:

And also our very own Twitter Account:

Many thanks goes to Lee Pagan, our Admins and also to all our Members for making the Group a safe place to come together to support each other, while sharing the good, the bad and the ugly.