World Voice Day 2020 | Focus On Your Voice

World Voice Day aims to highlight the impact of voice changes!

Dysphonia can be caused by many medical and neurological conditions such as Laryngeal Dystonia. Join in to raise awareness, support research into the early diagnosis and management of voice disorders!

Dysphonia can be debilitating and isolating. It can impact on individuals, the workforce and the broader community. It can ruin careers, relationships and lead to depression, yet it is often poorly diagnosed and frequently misunderstood. The Australian Dysphonia Network aims to change that by raising awareness through today’s launch of ‘The Value of Voice’ a short (90 sec) promo clip that is being shared in honour of World Voice Day.


For more information and to help spread awareness click the global links provided!

Types of Dystonia → Laryngeal Dystonia or Spasmodic Dysphonia
Australian Dysphonia Network (ADN) → Voice Disorders downloadable resources
World Voice Day Australia Voice Awareness Resources
World Voice Day → Voice Caring
ADSG Post → Have you heard of Dysphonia or Laryngeal Dystonia?
Brain Foundation → Spasmodic Dystonia
National Spasmodic Dysphonia Association (NSDA) → Voice Conditions
The Dystonia Society (UK) → Voice and laryngeal
Dystonia Medical Research Foundation → Spasmodic Dysphonia
Speech Pathology Australia Factsheets

#WVD #WVDAus #Dystonia #Dysphonia

MDS Blog: Rehabilitation as a Therapeutic Approach for Dystonia

MBS post Snippet:
Dystonia is the third most common movement disorder characterized by excessive involuntary muscle contractions leading to abnormal postures and movements. There are various clinical forms of dystonia, and the current available treatments remain mostly symptomatic. While the vast majority of focal dystonias respond well to pharmacological and surgical treatments, many patients with generalized dystonia continue to have mixed responses. The use of rehabilitation-based treatments has emerged as a means to improve outcomes based on the beneficial effect shown in other movement disorders. 
Dr Amit Batla (UCL Queen Square Institute of Neurology), Dr Lynley Bradnam (University of Auckland) and Dr Teresa Kimberley (MGH Institute of Health Professions) who have expertise in this field was invited to discuss the status of employing a rehabilitation approach for the therapy of dystonia. Click link to read further!
MDS Blog: Rehabilitation as a Therapeutic Approach for Dystonia

Consensus Paper: Experimental Neurostimulation of the Cerebellum | Springer for Research & Development

Source: Springer Creative Commons CC BY 

Paper Snippet

The cerebellum is best known for its role in controlling motor behaviors. However, recent work supports the view that it also influences non-motor behaviors. The contribution of the cerebellum towards different brain functions is underscored by its involvement in a diverse and increasing number of neurological and neuropsychiatric conditions including ataxia, dystonia, essential tremor, Parkinson’s disease (PD), epilepsy, stroke, multiple sclerosis, autism spectrum disorders, dyslexia, attention deficit hyperactivity disorder (ADHD), and schizophrenia. Although there are no cures for these conditions, cerebellar stimulation is quickly gaining attention for symptomatic alleviation, as cerebellar circuitry has arisen as a promising target for invasive and non-invasive neuromodulation. This consensus paper brings together experts from the fields of neurophysiology, neurology, and neurosurgery to discuss recent efforts in using the cerebellum as a therapeutic intervention. We report on the most advanced techniques for manipulating cerebellar circuits in humans and animal models and define key hurdles and questions for moving forward.
Click link to read more!

Source: Consensus Paper: Experimental Neurostimulation of the Cerebellum | Springer for Research & Development

Targeted Gene Panel May Provide Cost-Effective Diagnostic Tool for Movement Disorders | DMRF

Source: DMRF

Movement disorders, including #dystonia and parkinsonism, are a diverse group of diseases, often with varied and overlapping symptoms. These disorders can be acquired or inherited, with numerous genes identified, making diagnosis a challenge. A consortium of French researchers has devised a tool to help clinicians diagnose complex movement disorders. The research group created a 127-gene panel and tested it in 380 patients with suspected movement disorders. The panel had a diagnostic yield of 22%, which is in accordance with other targeted genetic testing for neurological disorders. Read more here


Source: Targeted Gene Panel May Provide Cost-Effective Diagnostic Tool for Movement Disorders Dystonia Medical Research Foundation

It’s Voice Awareness Month! A time to recognise and support people with voice disorders

Join in to raise awareness, support research into the early diagnosis and management of voice disorders and to appreciate how important it is for everyone’s voice to be heard!

Voice Awareness Month Australian Dysphonia Network

Voice Awareness Month Australian Dysphonia Network #Dysphonia #Voice #Dystonia

Did you know that laryngeal dystonia or spasmodic dysphonia is also known as a Voice Disorder?

It is a type of Dystonia (Neurological Movement Disorder), where spasms are experienced in the muscles of the larynx (voice box) that cause the voice to sound tight, strained or hoarse. It can affect speech or voice and make it difficult to communicate. Link to more info → Types of Dystonia

You can follow the Australian Dysphonia Network Facebook Page for updates or planned events. Keep an eye out for World Voice Day Aus

It’s that time of year again. The time that we encourage people to pause for a moment and spare a thought for the phenomenon that is voice!  Those tiny little vocal folds work so hard for us from the time we are born until the time we die – without any accolades or thanks…  they really are the ‘unsung hero’, so April is THEIR month.For most people – voice comes naturally. They are able to communicate with little or no effort or thought (perhaps on occasion, a little more thought would be useful ), but for some of us it’s an hour by hour (or sentence by sentence) struggle.The month of April is OUR opportunity to share our stories and to help people understand that voice does not come easily for everyone all the time. Read more here → APRIL 2018 is voice awareness month – Australian Dysphonia Network