ADN Film | Dysphonia & The Value of Voice

This film stars 4 Sydney based Voice Health Professionals who take you through some of the issues of dysphonia diagnosis and management in easy to digest language. Supported by 5 brave people who know the daily challenges of a voice disorder, this film helps to shed light on some of the trickier aspects of dysphonia but leaves us feeling hopeful.

Look out for the second feature film ‘Breaking the Silence on Chronic Voice Disorders’ coming soon!

Click link or play to view the video!
Film via Australian Dysphonia Network

View the NSDA Virtual Symposium Webinars!

The 2020 National Spasmodic Dysphonia Association Virtual Symposium took place in May, with a combination of live and pre-recorded presentations relating to Dysphonia or voice disorders.

Due to the COVID19 Restrictions there has been many online webinars from around the world! A thanks to all the networks for sharing such great webinars for the Dystonia community!

Click links to view the NSDA Symposium Webinars!

→ Laryngeal Mechanoreceptors and Laryngeal Motor Control

→ Wearable Non-Invasive Neuromodulation Technology for the Symptomatic Treatment of Spasmodic Dysphonia

→ Validation of the Communicative Participation Item Bank as an Outcome Measure for Spasmodic Dysphonia

→ Understanding Spasmodic Dysphonia

→ The Team Approach to the Patient with Vocal Fold Paralysis/Paresis

→ Spasmodic Dysphonia, Vocal Tremor, and Muscle Tension Dysphonia: A Voice Therapy Perspective

→ Botulinum Toxin Injections for Spasmodic Dysphonia

→ Alternative Injection Approaches for SD and Vocal Tremor

→ Surgical Procedures for Abductor and Adductor Spasmodic Dysphonia

→ Voice Techniques to Manage Symptoms of SD and Related Voice Conditions

→ Develop Resilience and Master the Art of Thriving

→ Question and Answer Panel with NSDA Researchers

→ Living with a Voice Disorder Discussion Panel

 

NSDA Webinars | Voice Techniques to Manage Symptoms of SD & Related Voice Conditions

This two-part webinar, led by Speech Language Pathologist/Voice Therapist, Christie DeLuca, walks you through specific voice techniques to help cope with and manage spasmodic dysphonia or voice symptoms. It covers  voice therapy techniques to decrease strain, tension, throat discomfort and severity of breaks when speaking, to increase speech fluency, and to increase ease and clarity of speech. It includes helpful “tricks” and tools for speaking on the phone, speaking in virtual meetings, and projecting your voice without effort. Source: National Spasmodic Dysphonia Association.

Information sheets relating to the two-part webinar
→ Quick Voice Tips for Dealing with Spasmodic Dysphonia or Related Voice Disorders
→ Spasmodic Dysphonia and Related Voice Conditions during COVID-19

Speak to your speech/voice therapy clinic or your doctor if you would like a consultation through telehealth.

Click play to view Part I Webinar!

Click play to view Part II Webinar!

World Voice Day 2020 | Focus On Your Voice

World Voice Day aims to highlight the impact of voice changes!

Dysphonia can be caused by many medical and neurological conditions such as Laryngeal Dystonia. Join in to raise awareness, support research into the early diagnosis and management of voice disorders!

Dysphonia can be debilitating and isolating. It can impact on individuals, the workforce and the broader community. It can ruin careers, relationships and lead to depression, yet it is often poorly diagnosed and frequently misunderstood. The Australian Dysphonia Network aims to change that by raising awareness through today’s launch of ‘The Value of Voice’ a short (90 sec) promo clip that is being shared in honour of World Voice Day.

 

For more information and to help spread awareness click the global links provided!

Types of Dystonia → Laryngeal Dystonia or Spasmodic Dysphonia
Australian Dysphonia Network (ADN) → Voice Disorders downloadable resources
World Voice Day Australia Voice Awareness Resources
World Voice Day → Voice Caring
ADSG Post → Have you heard of Dysphonia or Laryngeal Dystonia?
Brain Foundation → Spasmodic Dystonia
National Spasmodic Dysphonia Association (NSDA) → Voice Conditions
The Dystonia Society (UK) → Voice and laryngeal
Dystonia Medical Research Foundation → Spasmodic Dysphonia
Speech Pathology Australia Factsheets

#WVD #WVDAus #Dystonia #Dysphonia

Complete Survey! How Do Individuals with Chronic Dysphonia Cope?

Research Participants Needed – Australian Dysphonia Network

We are super excited … It’s H E R E …

Late last year the Australian Dysphonia Network funded a scholarship via the Dr Liang Voice Program to explore aspects of living with chronic dysphonia.

The study is being conducted by an Honours Student @ USyd and while the ADN has funded it, we have not been involved in any way in the design (so it will be exciting for all of us).

It is now live.. so it’s time to recruit. Have your say, and help shape the future of management of chronic voice disorders.

Follow this link to begin the survey!

https://sydney.au1.qualtrics.com/jfe/form/SV_3ZNWvk9q19eCVxj

NOTE: The study is open to individuals with chronic voice disorders aged older than 18 and must:

– Have dysphonia that is chronic; with the condition lasting at least 3-4 months prior to diagnosis

– Have a definitive diagnosis of the disorder provided by a qualified ear, nose, and throat specialist (ENT) and/or a qualified speech and language pathologist (SLP)

–  Other Individuals excluded in this study include dysphonia with co- existing speech or language disorders, hormonal voice disorders and psychogenic dysphonia

– Speak English fluently and international participants are welcome

Source: Research Participants Needed – Australian Dysphonia Network

‘Voice Disorders – join the conversation’ Forum

‘VOICE DISORDERS – JOIN THE CONVERSATION’

Australian Dysphonia Network Event – Saturday 27th October 2018

» Are you interested in learning more about voice disorders research, treatments and management?

» Would you like to meet others with voice disorders or to have a friendly catch-up?

If so, then this is the forum for you! Click link to buy your tickets. Hurry before tickets run out!

» https://www.eventbrite.com.au/e/voice-disorders-join-the-conversation-tickets-47382650784

Includes morning, afternoon tea and lunch!

This one day event will provide an opportunity to hear from experts and learn what’s happening in the world of voice disorders research, treatments and management. Above all, you will meet other who share your experience and who understand life with a broken voice.

The program is now available and will provide both formal and informal opportunities to learn, catch up with others, to laugh and to exchange tips and strategies.The event is open to people living with any chronic voice disorder. We encourage you to bring your partner or friend because we recognise the impact that dysphonia has on relationships … this event will provide them a chance to meet others, exchange stories and feel supported. 

Source: Forum 2018 – Speakers Announced – Australian Dysphonia Network

Related links: Introducing the fabulous Voice Health Professionals and other Guest Presenters for upcoming forum » https://bit.ly/2QK2iC7

Speech Pathology Week 2018 – Communication access is communication for all!

Join the conversation about communication accessibility and ensure ‘communication access is communication for all’.

Participate on social media by using #SPWeek #Dystonia

Speech Pathology Week seeks to promote the speech pathology profession and the work done by speech pathologists with the more than 1.1 million Australians who have a communication or swallowing disorder that impacts on their daily life. Communication is a basic human right and Speech Pathology Week seeks to promote this fact. More information here SP Week Flyer Dystonia can affect your voice, speech or swallowing

Depending on the type of Dystonia, it may also affect your throat, voice or vocal cords, impacting the person’s ability to speak and communicate. More information → Types of Dystonia.

Speech and voice therapy or techniques can help manage the symptoms of Dystonia. More details relating to Speech Pathology here → Speech Pathology Australia  – What is a Speech Pathologist?

Need some communication tips? Click link → Tips for successful communication

More Information

 Laryngeal Dystonia or Spasmodic Dysphonia (voice)

→ Augmentative and Alternative Communication (AAC) Factsheet

 ACC Scope Handout and Communication apps 

Event Reminder – ‘Voice Disorders – Join the Conversation’

This forum planned by Australian Dysphonia Network (ADN) for Saturday 27th October 2018, is an opportunity for those living with or affected by a voice disorder, to come together and share ideas, experiences and support, while hearing from specialistists and researchers in the field. It is open to people living with a voice disorder & their companion(s) as well as professionals and students working or interested in the field of voice health. Link to further details, cost and to register for event → Voice Disorders – Join the Conversation Forum.

It’s Voice Awareness Month! A time to recognise and support people with voice disorders

Join in to raise awareness, support research into the early diagnosis and management of voice disorders and to appreciate how important it is for everyone’s voice to be heard!

Voice Awareness Month Australian Dysphonia Network

Voice Awareness Month Australian Dysphonia Network #Dysphonia #Voice #Dystonia

Did you know that laryngeal dystonia or spasmodic dysphonia is also known as a Voice Disorder?

It is a type of Dystonia (Neurological Movement Disorder), where spasms are experienced in the muscles of the larynx (voice box) that cause the voice to sound tight, strained or hoarse. It can affect speech or voice and make it difficult to communicate. Link to more info → Types of Dystonia

You can follow the Australian Dysphonia Network Facebook Page for updates or planned events. Keep an eye out for World Voice Day Aus

It’s that time of year again. The time that we encourage people to pause for a moment and spare a thought for the phenomenon that is voice!  Those tiny little vocal folds work so hard for us from the time we are born until the time we die – without any accolades or thanks…  they really are the ‘unsung hero’, so April is THEIR month.For most people – voice comes naturally. They are able to communicate with little or no effort or thought (perhaps on occasion, a little more thought would be useful ), but for some of us it’s an hour by hour (or sentence by sentence) struggle.The month of April is OUR opportunity to share our stories and to help people understand that voice does not come easily for everyone all the time. Read more here → APRIL 2018 is voice awareness month – Australian Dysphonia Network 

Have you heard of Dysphonia or Laryngeal Dystonia?

Dysphonia or Laryngeal Dystonia is a voice disorder or a type of Dystonia (Neurological Movement Disorder), where spasms are experienced in the muscles of the larynx (voice box) that cause the voice to sound tight, strained or hoarse. There a number of types of Dystonia which can affect speech or voice and make it difficult to communicate.

World Voice Day What is Dysphonia

 

Please help us spread awareness! 

Australian Dysphonia Network → Living with a voice disorder

Brain Foundation → Spasmodic Dystonia

National Spasmodic Dysphonia Association (NSDA) → Spasmodic Dysphonia

The Dystonia Society (UK) → Laryngeal dystonia

World Voice Day → Voice Caring