Events for July
Parkinson’s & Movement Disorders Information Session for Patients & Carers
The Asia-Pacific Centre for Neuromodulation (APCN) part of the Queensland Brain Institute at the University of Queensland is hosting a Patient/Carer Deep Brain Stimulation Information session. All patients and carers living with Parkinson’s Disease, Dystonia, Essential Tremor and Tourette’s Syndrome are welcome.
DATE: Saturday 21 July 2018
TIME: 9am – 1pm
VENUE: Redland Bay Golf Club, North Street, Redland Bay, QLD 4165
RSVP: As a light lunch will be provided, for catering purposes please RSVP by completing the registration form at the following link and clicking on the registration button.
CONTACT: Sara Gottliebsen at email@example.com or call 07 3346 6353 on Monday, Tuesday or Friday
National Pain Week – 24-30 July 2018
National Pain Week is convened by Chronic Pain Australia, dedicated to reducing the social and other barriers to living with chronic pain. Dystonia can cause a range of symptoms including pain. For more information relating to managing pain or coping with pain visit the Chronic Pain Australia website.
Events for August
Speech Pathology Week seeks to promote the speech pathology profession and the work done by speech pathologists with the more than 1.1 million Australians who have a communication or swallowing disorder that impacts on their daily life.
Communication is a basic human right and Speech Pathology Week seeks to promote this fact.
The theme for 2018 draws on aspirations from the Speech Pathology 2030 project. The theme reinforces the important role that speech pathologists play in the lives of Australians with speech and swallowing difficulties.
Events For September
Events For October
National Carers Week is a great opportunity to raise awareness about the diversity of carers and caring roles in your local community. There are a variety of events and activities being run in every state and territory throughout National Carers Week and you can find one near you clicking this link Find an Event.
Dystonia Awareness Events – Past
The Premiere of the short film ‘Dystonia’ screened in June 2018. DVD coming soon!
Lydia Fay portrays a highly successful musician with a neuromuscular disorder, in an intimate journey of love and loss. We gain through Fay a deeper insight into the world of ‘Dystonia’, and the life of a musician who must turn her situation around in the face of a devastating fate. Written and directed by Peter Chiverton Starring Lydia Fay, Nathan Bolton and Charlotte Jakubowski
Dystonia Short filmTrailer
Phone: 0400 639 993
Free Dystonia Presentation – Live online by a Neurologist!
The Brain Foundation will be running a free online Dystonia presentation on Tuesday, 7 June 2016 at 7pm – 8pm.
Neurologist Florence Chang from Westmead Hospital will discuss Dystonia and answer your questions such as:
– What is dystonia?
– What do researchers know about dystonia?
– When do symptoms occur?
– What treatments are available?
– How effective is Botox?
– What research is being done?
There will also be a live Q&A session at the end of presentation. As the places are limited it is best to register asap. When you register you will receive an email with instructions on ‘How to Join the webinar’. Please not the time zone.
Link to register for the online session: Dystonia live online presentation registration
Dystonia Market Stall
On Sunday 8 November 2015, Margot Chiverton an ADSG member who also runs the SA Dystonia Group organised a Dystonia Awareness stall at a local Market. Awareness materials were displayed to raise more awareness of Dystonia and funds raised donated to research into understanding the cause and finding a cure for Dystonia.
Dystonia Awareness Information stall
Any community member welcomed to visit the Pharmacy where there will be someone there to greet you and provide more information about Dystonia. There will be ribbons available to purchase and any funds raised will be donated to the Brain Foundation towards Dystonia Research.
When: Stall was only organised for awareness month in September
Where: Greenwith Pharmacy, Highland Shopping Centre 222 Target Hill Rd (Cnr Golden Grove Rd), Greenwith SA 5125
Adelaide Dystonia Conference May 2015
The Parkinson’s Australia National Conference was held in Adelaide at the Convention Centre 27-29 May 2015. The Dystonia Program ran on Friday 29 may 2015 and was very successful. Some ADSG members attended and for those who were unable to attend they had the opportunity to view the session online.
We would like to thank the Dystonia organising committee and to the ADSG members who volunteered their time to assist.
For an update on the Dystonia session please click on link provided to direct you to Blog post.