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Donate to Dystonia Research

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The Brain Foundation

There is no cure for Dystonia at the present time. Please donate to research that is working towards a cure. 

You can donate by clicking on the Brain Foundation Dystonia image or the link provided to direct you to the Brain Foundation donation page. On the DONATE form choose ‘Dystonia Research’ in the drop down campaign box. http://brainfoundation.org.au/donation

You can also donate via the phone by contacting the Brain Foundation on 1300 886 660.

To set up a fundraising page or like to know more about fundraising towards Dystonia research contact Fiona Reid at fiona@brainfoundation.org.au

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Complex Movement Disorders Program (Royal Children’s Hospital)

The RCH Complex Movement Disorders Program (CMDP) supports children with a Movement Condition, including Dystonia. It consists a variety of health professionals or a multidisciplinary team to provide care, innovative and intensive therapies, such as Deep Brain Stimulation to improve their quality of life.

Neurologist, Associate Professor Andrew Kornberg fundraised for the program, by flying a plane around Australia over a 27 day period, which included visiting RCH patients. More here: Cutting Edge Care for Complex Movement Disorders.

To donate directly to the RCH Complex Movement Disorders Program (CMDP) follow these  instructions.

  1. Visit or click this link → www.rchfoundation.org.au

2. Click DONATE button – complete your personal details 

3. In the COMMENTS box, add the following reference/text: Donation to Complex Movement Disorders Program @ RCH
If you are a member of ADSG you can add the following if you wish to: Member of Australian Dystonia Support Group – donation to Complex Movement Disorders Program @ RCH

For further info in regards to donating or fundraising for the CMPD program contact Donna Aranyi at donna.aranyi@rch.org.au or by phone 9345 4510.

blue lineDonate to the Queensland Brain Institute (QBI) – Asia-Pacific Centre for Neuromodulation

APCN research programs aim to secure better outcomes for Deep Brain Stimulation (DBS) patients and expand the applications of DBS to treat new conditions and more patients. Link to more information: https://qbi.uq.edu.au/apcn.

Your support can help revolutionise the diagnosis and treatment of neurological disease!

Click on the following link to direct you to donate page and under ‘Make a gift to’ click Asia-Pacific Centre for Neuromodulation.

Donation Link: (QBI) – Asia-Pacific Centre for Neuromodulation

blue lineDonate to Dystonia Research/treatment at University of Technology Sydney (UTS)

For more details on how to donate please click on link provided. Choose to donate to UTS Health Graduate Treating dystonia.

Link: Give to UTS

Australian Dysphonia Network: Help us to bring the voiceless back into the conversation

While the causes of dysphonia are many, the trickiest ones are neurological. Those who are affected ‘look and seem’ otherwise well, which often makes diagnosis slow, and public understanding poor. Their aim is to support people affected by life changing voice disorders or dysphonia by educating, lobbying and raising awareness of voice disorders, including raising funds for research into cause & management. More info coming soon.

For further details and to donateMy Cause Page – Australian Dysphonia Network

 

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