Update! Dystonia Program – Parkinson’s Australia National Conference

The Parkinson’s Australia National Conference was held in Adelaide at the Convention Centre 27-29 May 2015. The Dystonia Program ran on Friday 29 May 2015 and was very successful. Several ADSG members attended, and for those who were unable to attend, they had the opportunity to view the session online. 

Professor Lynley Bradnam Dystonia session Presentation Can non-invasive brain stimulation improve dystonia

Professor Lynley Bradnam Dystonia session Presentation Can non-invasive brain stimulation improve dystonia. Do not copy or use this image without permission

The Dystonia stream program started with an introduction by Dr Lynley Bradnam, a Professor and Head of Discipline at University of Technology, Sydney (UTS).  She thanked Parkinson’s SA and Parkinson’s Australia for their support and for allowing the Dystonia session to be part of the conference. She also thanked the sponsor Allergen, the speakers attending, the organisers of the conference and the Dystonia organising committee for organising the Dystonia session. Professor Bradnam then presented an overview of non-invasive brain stimulation for people with Dystonia and a summary of research and studies. Please click on images provided to view the presentation slides and a summary.

Professor Lynley’s presentation Can non-invasive brain stimulation improve dystonia - Summary

Professor Lynley’s presentation Can non-invasive brain stimulation improve dystonia – Summary You will need permission from the ADSG to copy or use this document. You may share this link page

Professor Lynley’s presentation Can non-invasive brain stimulation improve dystonia - Slides

Professor Lynley’s presentation Can non-invasive brain stimulation improve dystonia – Slides

Suzanne Bayliss presented Communication. What's UP? Communicating with a person who has a neurological disability

Suzanne Bayliss presented Communication. What’s UP? Communicating with a person who has a neurological disability. Do not copy or use this image without permission

The next Speaker was Suzanne Bayliss who has Dystonia, is the contact for the Dystonia Support Group of Cairns and is a member of the Australian Dystonia Support Group. She gave a brief summary about what approach could be taken with people with a neurological disability who have communication or speech difficulties.

Please click on links provided to view the presentation slides and a summary.

Suzanne Bayliss Slides “Communication. What’s UP? Communicating with a person who has a neurological disability”

Suzanne Bayliss Summary “Communication. What’s UP? Communicating with a person who has a neurological disability”

There was a session with physiotherapists James McLoughlin, Ann Buchan and Melani Boyce demonstrating the way they approach some of the treatments for people living with Dystonia. Attendees had an opportunity to ask questions.

Next up was the Keynote Presentation by Physiotherapist Jean-Pierre Bleton and a presentation by Neurologist, Dr Florence Chang.  Jean-Pierre Bleton is a Physiotherapist of the Parkinson’s Unit in the Neurology Department at the Rothschild Foundation in France.  He discussed Retraining Therapy for Cervical Dystonia, strengthening the muscles, and showed images or demonstrations on how this is achieved. Dr Florence Chang currently undertaking a post-doctorate research degree on the pathophysiology of dystonia provided an update on the management of Dystonia, genetic causes of Dystonia and ongoing Dystonia research at Westmead hospital. Please click on link provided to direct you to Dr Chang’s presentation.

Dr Florence Chang: “Update on Dystonia – What is out there for me and how can I help?”

At the end of the Dystonia program attendees had an opportunity to ask questions to a panel of Dystonia specialists:- Dr Caroline Tanner Professor at Department of Neurology, University of California, Dr Jean-Pierre Bleton, Dr Florence Chang and Dr Anupam Datta Gupta, Consultant Physician at Queen Elizabeth hospital in Adelaide. 

Other Dystonia presentations during the Parkinson’s program:

Click on links provided to direct you to the presentations.

Dr Anupam Datta Gupta – “Botulinum toxin injection in foot dystonia experienced by the Parkinson’s disease patients with Deep Brain Stimulation”

Dr Caroline Tanner – Studies in Parkinson’s disease and Dystonia: An Epidemiologic Perspective”

It was very exciting to have Dystonia sessions added to this national conference, and we hope that there will be more sessions and programs offered in the future. It certainly has helped raise more awareness for Dystonia!

The Australian Dystonia Support Group would like to thank the Dystonia organising committee, the support group members who assisted and, Parkinson’s SA for their support and help in raising awareness for Dystonia.

Check out these Jump for Dystonia Down Under photos! Taken at the Dystonia Sessions on 29 May at the Parkinson’s Australia National Conference in Adelaide South Australia.

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