Happy New year! Recap of ADSG 2014

Happy New Year!

From October – December 2014 there were 2,424 views on this site.

https://australiandystoniasupportgroup.wordpress.com/2014/annual-report/

ADSG have achieved great things in 2014. Thank you to ADSG members who have helped to raise more awareness of Dystonia. Here is a recap of what has been achieved:

Launch of new ADSG website –  4 October 2014

 

Most viewed pages:                     Image courtesy of Stuart Miles at FreeDigitalPhotos.net                 

  • Homepage         
  • Support meetings                             
  • What is Dystonia
  • About ADSG
  • Events

The most viewed stories:

  • Valium, no way!
  • Living with Dystonia
  • Zizi’s journey of healing

The highest amount of referrers to this site:

The most links clicked:

  • ADSG Flyer
  • Parkinson’s Australia National Conference Dystonia program Flyer 
  • Facebook
  • Leader Newspaper website
  • Melbourne Patient Event with Dystonia Europe

Countries most viewed this site:

  • Australia
  • United Kingdom
  • United States

Australian Dystonia September Awareness Month 2014 – 1-30 September 2014

It was the first successful Dystonia Awareness Month. ADSG members joined in and helped spread the word and raise awareness. The awareness website had info on Dystonia, updates and events, stories of several sufferers, an awareness video and links to further information and support groups. 

image gallery fro ADSG blog post JPEGDystonia awareness Month September 2014 website

Dystonia Sufferer Suzanne Bayliss article on ABC Open Projects – 15 June 2014

surgical team working

ABC Open asked people of regional Australia to share their stories so Suzanne Bayliss (ADSG member) decided to share her story and experience in having Deep Brain Stimulation Surgery. Great work Suzanne! Click on link to direct you to project:

My battle with dystonia

By Suzanne Bayliss ·  2 min read · From 500 Words: Endings

“You may hear drills, I’m not sure. Although not unconscious, you are heavily sedated as we cut through your skull” says the anaesthetist. Okay, the Deep Brian Stimulation Surgery Admission Pack stated this. It is also what the anesthetist told me in yesterday’s consultation. Surgery is finally under way. Via ABC OPEN: My battle with dystonia From Project: 500 Words: Endings.

Dystonia National Patient Event in Melbourne: Dystonia Europe President visits Melbourne – 11 January 2014

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Dystonia Melbourne Event was organised by the admins of the Australian Dystonia Support group in January 2014. The event went very well. Many Dystonia sufferers and family members were present. Presentations were made by Dystonia Europe CEO Monika Benson and Dr Lynley Bradnam Associate Professor of Physiotherapy at Flinder’s University. If you would like to know more about the event click on links provided:

https://dystonia-europe.org/2014/01/dystonia-europe-dystonia-patient-event-melbourne-australia/

http://www.bionicsinstitute.org/news/Documents/Brainwaves_Newsletter_Winter_2014_FIN_ISSUU.pdf

Keep an eye out for more updates and events in 2015!

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